Sunday, December 16, 2018

ADHD Choices

There is nothing easy about making the decision to medicate my ADHD children.  You have societal pressures, conern for your childs health, is this the right decision forever, is it time to switch medication.  Then you have to go to the monthly appointments or every 3 month appointments to check in.  Did I forget to mention that it takes me about 7 days to get a prescription filled?  Between calling the nurse, waiting for the doctor to write it out, then I have to drive to the doctors office to get the paper prescription, then drop off the paper prescription, then have the prescription filled and pick it up again.  Often times my ADHD children forget to tell me they are running low on medication.  Sometimes its a miracle that all of it is even working out.

This week was particiularly challenging. Our ADHD doctor does not accept insurance.  That means visits with him are $115 and visits with our pediatrician are free.  So once our children are "stable" we ask the ADHD doctor to write a report to our pediatrician so we can switch to 'free' doctor appointments.  After 18 months and 4 different prescriptions for Eleanor it was finally time to switch to the pediatrician.  We visited with our Doctor..... who did not have the report.  But Eleanor only had 5 pills left from her last prescription.  I call the ADHD doctor who says he will bring the report righ tnow.  I still have HOPE that we can get a scrip today.  But we keep talking and now the pediatrician is concerned about Eleanor's weight loss.  She has been losing weight for the last 2 years.  Well.... she only starting medicating a year ago, so I think maybe her weight is finally stabilizing.  The pediatrician doesn't agree with me and won't write the prescription.

So after waiting a month for the appointment, there was no report and it didn't matter anyway because the doctor "doesn't feel comfortable" writing her a prescription for something she has been taking for 9 months.   Sigh

Well, I still don't have a solution for when Eleanor runs out of meds and her days turn into crying meltdowns due to her emotional dysregulation.  I go talk to the receptionist for the ADHD doctor who assures me they will write a prescription and get her in for a check-up.  We talk about the difficult choices we make for our children.  Both William and Eleanor are so successful right now on their medication.  But it kills their appetite.  So I literally have to chose between my children being underweight and adjusted and functioning.  OR  Being a healthy weight and not able to remember anything, their emotions all over the place and their social skills suffering.

Those are the choices I make as a mom.  Constantly weighing the odds, looking into their future and then taking a giant leap off of a cliff hoping that I picked right.  Because they didn't come with instructions.  I don't have a degree in pharmaceuticals or developmental pediatrics. 

Thursday, December 13, 2018

ADHD Adventures

Life is challenging as an ADHD mom with 3 kids with ADHD.  Most days are putting out fires and being

So today I am fixing an ADHD doctor mess. And I'm frazzled. And rushing to do everything. And I walk back to the waiting room and she's GONE. So I say out loud, "great! I lost her again!". And it was a full waiting room. And I know they heard me complaining. Every single adult points to the bathroom.... "She's in there!". Lol. I laughed and said, "thank goodness. I have already lost her once today!"

I was with my village.  Every single parent nodded their head and said, "we get ADHD.  We are your tribe."  I almost cried.

Because ADHD is hard.  Its really hard.  Its insomnia, diet, school work, social life, maturity... balancing all of those things so that your child doesn't take too much medicine that they stop sleeping and start losing weight.  Or deciding that losing 2 pounds is okay, but losing 3 pounds is not okay.  Or they should stop taking medicine until they grow an inch.  And then finding the right team of professional to support both you AND your child.

I felt at home in that doctors office... the one who doesn't take insurance, so now I have to weigh the pros and cons of spending a lot of money on health care.  The receptionist gave me that smile of understanding when I apologized for rushing in and bypassing the room full of patients.  And I was at home with people who HAVE to know what ADHD is.