Saturday, April 19, 2008


I came across this survey and article in one of my support groups. Grab your kleenex though. This isn't for the faint of heart.


I'm wondering if you would be willing to participate in a study i am doing
involving parents who have had a loss and/or forward this email and link to
your list or post it on your website.

As you may know, I am a bereaved parent who had a stillbirth three years
ago. I am currently co-conducting a survey about medical bad news delivery and
the communications between patients and care providers about their diagnosis.
I am specifically hoping to reach parents who have had a stillbirth, neonatal
death (death of a child within 28 days of birth) or a pregnancy loss.

We are hoping to learn more about this kind of communication and offer
insights to care-providers about the effects of these interactions. Data
collected from this confidential survey will be used for completion of a course
project in the master’s program at San Francisco State University. The survey is
confidential and should take approximately 25 minutes to complete.

If you have any questions, I would be happy to answer them. I can be reached
by email at

I also have hard copies of the surveys and if you send me an email with the
street address, I would be happy to mail them to you.

I send my sincere thanks for considering helping get the word out about this

Suzanne Pullen
More about my story at:

No comments:

Post a Comment